Its coming together

I didn’t think it possible that just on a lot of caffeine and pure adrenalin we could plan an event in just under 6 days for 350 people minimum. There has been a huge outpouring of assistance from all over and it has made this into what looks like it will be an unbelievable event. For those of you reading this who helped, Thank you, we could not have done it without you!

As for Ben he is still struggling, this last round of chemo is notorious for incredibly bad mouth sores, intense headaches and major mood swings. I think the mood swings are hardest on the parents because they know it is not him who is hitting them and saying I hate you, it is the drugs, but it is so so hard. Sitting there and playing with him, he is a normal kid one minute and then of course he will just start crying. He doesn’t understand why and it scares him whey he has these mood shifts as well. That is probably the part that hurts the worst is seeing the fear in him at different times. This is such an unbelievably terrible disease (not that an any disease is any better I am sure in children).

But we are going to leave this entry upbeat with an amazing carnival that will be going on in a couple of days. It keeps looking better and better he will be able to make it and everything else is a go! So keep your fingers crossed that he keeps getting better at least until the event, and away we go!!